2015 has begun with the flu
....and nothing can prepare you for how gut wrenching it can be
...to see your child sick and struggling
My biggest pain point
....is not being able to make things better.
Allowing time to take its course...
Making my best attempt at being patient
...and just being there.
However
Whenever
Wherever
...I can be.
Brighter days on the horizon.
...for Joe.
Somehow, someway, our paths were meant to cross.
...and I'm thankful.
I stopped by to see him today.
Snow.
Rain.
...the day before Thanksgiving.
Life continues to be a roller coaster ride for this tough young man and his family.
...and he continues to fight.
Somehow.
Someway.
...and I'm so very thankful.
Joe's Fundraising page - click HERE.
…we lost you.
…and minutes before,
I took this photo
…thru tear filled eyes.
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The same eyes are misty today as I share this.
By far, one of the toughest images that I’ve ever made.
It hits hard
…somewhere deep inside.
Tapping a longing for what was…
…and will never be again.
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We miss you Henry boy.
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Keep watching over us.
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Keep watching…
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Today I stopped by Kennedy Krieger Institute to see Joe.
Therapy was underway when I arrived. I said Hi and drifted into the background, watching the occupational therapists work with Joe on squeezing his legs together. Hard work...and he did such a great job.
I spent some time catching up with Angie -- getting a little insight into the ups, downs and in-betweens. So many questions and unknowns. I couldn't stop thinking of ways to try and help.
The days ahead, for all of us, are uncertain. One thing is for sure, Joe's determination and spirit are something to behold. This young man is very special.
Keep fighting the good fight Joe.
Angie checking in on Joe's pain level.
Joe's gift to Angie on her birthday.
Joe's art.
